Episode 4-13

Guest:  Courtney

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Airing: Aug 20, 2019

 

Our Podcast Guests

Courtney Waller is the co-Founder of Timothy Syndrome Alliance, and mom to a 5yo daughter with the condition.  

She has been a legislative advocate for the rare disease community for the past five years.  Primarily working on legislation by state.  She is the founder and principal of Policy Served Rare, a patient centered think tank focusing on policy that focuses on health and mental health care for the rare disease community. 

 

Website: www.SADS.org/TSA

Twitter: @Timothy Syndrome

 

Facebook: Policy Served Rare @policyservedrare