Episode 4-13

Guest:  Courtney


Airing: Aug 20, 2019


Our Podcast Guests

Courtney Waller is the co-Founder of Timothy Syndrome Alliance, and mom to a 5yo daughter with the condition.  

She has been a legislative advocate for the rare disease community for the past five years.  Primarily working on legislation by state.  She is the founder and principal of Policy Served Rare, a patient centered think tank focusing on policy that focuses on health and mental health care for the rare disease community. 


Website: www.SADS.org/TSA

Twitter: @Timothy Syndrome


Facebook: Policy Served Rare @policyservedrare