Season 2 Episode 9
In this episode we will discuss idiopathic hypersomnia with Diana. This is a neurological sleep disorder that can affect many aspects of a person's life. Symptoms often begin between adolescence and young adulthood and develop over weeks to months. People with IH have a hard time staying awake and alert during the day (chronic excessive daytime sleepiness, or EDS) They may fall asleep unintentionally or at inappropriate times, interfering with daily functioning. They may also have difficulty waking up from nighttime sleep or daytime naps. Sleeping longer at night does not appear to improve daytime sleepiness. IH is a chronic disorder. Symptoms may remain generally stable over time, or severity may fluctuate over time.
Diana was diagnosed with idiopathic hypersomnia in 2010 after years of searching for answers. She started advocating for IH awareness briefly after a diagnosis as support for hypersomnia was very limited. In 2014, Diana started a support group that meets monthly in Atlanta for those with Hyperosmnia and their supporters as well as yearly support retreat called Snooze Cruise.